First things first please, take a few minutes to listen to this song and story behind it and then I promise I’ll talk your ear off.
There’s a special kind of grace needed when you have a “chronic manageable disease” like HIV. See people will tell you that “Oh yeah. My neighbor has it and he’s fine”, “Oh I just read a thing about a girl in France who cured herself from it by going vegan” or “Maybe you should take more vitamins/take less vitamins/get new medication/stop medication/do yoga/do Pilates/meditate more.” Grace comes in handy when you can nod your head and say, “Okay.” But the thing is these poor, well-meaning folks are just trying to say something to make you feel less awkward and don’t really realize that we’ve pretty much tried everything if we’ve had a manageable disease for a few years. I’ve told this story on these pages before but its a funny one and worth repeating. When I was first diagnosed with HIV nearly 4 years ago in August, my nurse when trying to talk me off the ledge said, “HIV is a manageable condition like diabetes.” Oh in that case, sign me up. because diabetes always seemed like a trip to the tropics. Tahiti? No thanks! Who needs it when you have diabetes!
Also, let’s talk about this manageable word they like to throw around.Doctors are in essence are telling us that we are becoming managers of whatever our given affliction is. Correct me if I’m wrong but management seems like a lot of work. Whether you’re managing Mariah Carey or a McDonald’s, managers are some hardworking motherfuckers. As my own condition has recently caused me some health problems with a side order of fear ( I would have rather had onion rings, by the way), I have to get into gratitude. I am grateful that it’s treatable and that I have good doctors. I’m grateful for all the prayers and spiritual assistance. Yet I acknowledge that it sucks and that it’s hard. So here is where Stevie comes in.
That song so beautifully talks about giving it away when you feel the absolute worst. I hope I can do that. I need to do that right now. Here’s my attempt to do so. If you have traumatic brain injury, manic depression, rheumatoid arthritis, bipolar disorder, suffered a stroke, are getting off drugs, have just lost a loved one, can’t get out of bed, tried to kill yourself, suffering from MS, learning to walk or speak again, trying to not pick upon a drink, living with HIV and yes diabetes; all I can say is I get it. As a bonus, I won’t tell you what books to read or that my old English teach has whatever you’re dealing with. All I can tell you is even if it is manageable, I know you hurt , that everyday is a battle to stay positive and healthy and that I am sorry. I hope you can laugh, I hope you do nice things for yourself and know that by fighting and managing everyday, you’re helping me and lot of other people. So has anybody ever written anything for you? I have.
And I hope you can do the same for someone else. As Stevie says, “If not for me, do it for the world.”